I also couldn’t do anything I used to love doing before my diagnosis. I only had enough strength to breathe. My head felt like it was stuffed with cotton balls. I couldn’t think or make decisions. That will take time to recover.

I normally don’t like watching tv, but I watched a lot of HGTV shows when I was hospitalized. It was mindless entertainment, and I watched happy people looking for condos in the Caribbean. My husband hated it, but it helped me escape my sad reality.

To my husband’s consternation, I kept talking about moving away from our dreary Midwestern weather. Several years later we moved to Arizona! Lol

Hi
I’m Jennifer. I had my BMT in Jan ‘23. Prior to my diagnosis and extensive chemotherapy and ultimate BMT, I was very active and had a great creative career. I loved dreaming of new creations and thought that at least in the hospital I’d have time to create in my head. The treatment totally took that away from me. I don’t know if it was the extreme exhaustion or that nothing in my life was the same. I couldn’t plan, couldn’t create and couldn’t think of a future. During my recovery in bed, I was weak and nauseated with absolutely no appetite. Finally, one day after months of no energy and no appetite, I awoke with the sense of energy running through my body. I began to do things I would normally do at home. I also began to dream of creating and planning a future. Now I’m getting all of my vaccinations again and that can zap my energy but I know that I have a future and I can still dream and create. Your son is in that limbo state. It takes time to regain the energy to connect with family and friends. It takes a lot of energy and effort to just be around other people who love and want you to get better. TV was my only outlet for my suffering. It will get better. Set very small goals. One of my goals was to take a shower and get dressed everyday even though that effort exhausted me to the point I just crawled back in bed. Prayers for recovery ❤️‍🩹