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Timing of taking prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Jul 28 10:05am | Replies (52)

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@taylorannette555

I am so ecstatic to have found this sight!!!
I have mixed autoimmune issues. I feel I have not been managed in the way that farm animals deserve.
Nothing but Prednisone has helped me function. I have damaged progressing now with my liver, first with my kidneys, and was told by my rheumy my fam. heart disease was suspicious of autoimmune damage, but then denied cardiac Ct.or MRI.because I squeaked by on a stress test.
At any rate, I was cut off like a drug addict of Prednisone. Unable to walk, running in circles. Not able to take any meds for gout, or statins or Tylenol (liver enzymes increasing) or ibuprofen types (kidney issues, I had to stop)
So what is left ? Opiates, really? This day in age! What so I can slowly die an addict? I am homeless from this, spent my life savings.
I see my opinions, except osteoporosis, maybe dibeties and go back to work as a nurse. Or die in a RV in a parking lot.
Gee. That's not a thought question for me.

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Replies to "I am so ecstatic to have found this sight!!! I have mixed autoimmune issues. I feel..."

Hello @taylorannette555, I would like to add my welcome to Connect along with @marmak and others. I can't imagine how difficult it is for you dealing with multiple autoimmune conditions and not being able to take any meds due to kidney or liver issues. I'm sure that you are not alone with your struggle and there are others here on Connect who can relate and share what has helped them. Earlier this year the search function on Connect has been enhanced and locates discussions, comments, newsfeed and blog posts on Connect related to your search phrase or words. You might want to click on the search box at the top of the Connect page or the small magnifying glass icon if you are using a mobile device to view Connect. Here's a list of results searching with the words "multiple autoimmune" if you want to take a test ride - https://connect.mayoclinic.org/search/?search=multiple+autoimmune.

I thought you might also find the following site helpful when dealing with health care appointments - Patient Revolution: https://www.patientrevolution.org/tools.

I'm sorry to hear you were cut off of prednisone. Was your rheumatologist able to offer any helpful alternatives or suggestions?