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Non-diabetic lumbosacral radiculoplexus neuropathy
Neuropathy | Last Active: Sep 4, 2023 | Replies (24)Comment receiving replies
My mother has recently been diagnosed with this. Was just wondering how you are progressing now? And has anything showed more success with you rehab? And do you have any other advice you can share? As being so rare we are struggling to find much info.
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I am slowly getting better. I do not need any canes or a walker. I have also recently stopped using a brace on my leg. Thank God I am healing…ever so slowly! That’s been the hard part is being patient. I’m about 75% healed. April will be two years and hopefully I will have full function.
My advice is to find the best hospital in your area and get care there. I drive 2 hours to Duke University Hospital and get care there. I had 12 weeks of steroid injections and I think they helped. They have side effects: lack of sleep, weight gain but I think they were overall positive. Physical therapy was a big plus and going to the gym was a huge help. Just move…walking is great too. The more movement she can do the better. Good luck and be patient!