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DiscussionQuestions on IVIg treatment for what I have: Axonal sensory-motor
Neuropathy | Last Active: Sep 11, 2023 | Replies (40)Comment receiving replies
Replies to "I also have SFN. Took 3 years to diagnose. It also took 3 neurologists to figure..."
I'll let you know how it goes. I actually had to do my own diagnosing and find my own treatment. But after reading about it, my neurologist agreed with me. I could see a wheelchair in my future easily so I appealed to him that way.
I have also been trying to figure out sudden onset of nerve pain that has persisted for 3 years this month. Started about 9 months after sars-cov infection and has manifested into muscle losss and loose skin, i bruise easily, skin tears, ive lost a lot of muscle mass , but gained weight, from abdominal bloating and organ inflammation liver, spleen, high ebv antigens, along with elevated trypatse, along with loss of smell which is very mionor issue for me for last 3 1/2 years. I have seen about 6 neurologist now, had 4 emg and another scheduled in oct. Have small fiber neuropathy but doesnt get any treatement. Hopeing also to try IVIG, dr just prescribed Mestinon for nerve pain , as indicated for treatment of hereditary alpha tryptesemia (genetic allergy thanks again to covid) EMR record errors are making treatment even more difficult. These symptoms are all related and they are all a progression of long covid, Virus is still damaging my body and i dont know why it wont go away. I hope reaserches can find a way to calm down the remanats of covid causing all this. The neurological impacts of covid are extremly painful 3 years in.