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Uterine Leiomyosarcoma second opinion needed

Gynecologic Cancers | Last Active: Sep 7, 2023 | Replies (11)

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@naturegirl5

@apple321 I’d like to welcome you to Mayo Clinic Connect and to this support group. Uterine cancer is something none of us ever thought we would hear and yet here we are. This is a wonderful group of women who will provide you with emotional support and suggestions.

I can understand why you would like another opinion. If I were in your position and my oncologist advised no additional treatment at this time I would be worried too. I was diagnosed with endometrial cancer in 2019, recurrence in 2021. In 2019 I had a hysterectomy with ovaries, fallopian tubes and cervix all removed too. I’ve been conscientious about going to each cancer surveillance appointment which was how the recurrence was found in 2021. I had external beam radiation therapy and brachytherapy. I’m headed back to Mayo Clinic this week for my next cancer surveillance appointment. My appointments include CT scans and physical exam (pelvic exam with speculum).

Are you located in the U.S.? If so, are you currently getting your cancer care at a comprehensive cancer center? This is a clinic, often located located within an academic medical center, where there is both medical care and research and the providers work in a collaborative manner. Mayo Clinic is part of this network.

You can ask your primary care provider for a referral to Mayo Clinic or you can refer yourself. Here is the link that will give you can request an appointment:

Mayo Clinic Appointment Request:

http://mayocl.in/1mtmR63

If you’d like a second opinion at a National Cancer Institute Designated Cancer Center then here is the link. These are listed by state.

—. https://www.cancer.gov/research/infrastructure/cancer-centers/find

How are you feeling this evening? Do you have fatigue or pain from the hysterectomy?

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Replies to "@apple321 I’d like to welcome you to Mayo Clinic Connect and to this support group. Uterine..."

Helen praying all goes well with your dr visit this week 🙏🏼