← Return to Cavitary MAC/MAI and choosing no drug treatment ?

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@glendamoseley1

@dls224 I was diagnosed with Be/MAC in 2017. Last October I went to NJH for first time, and was told I had a cavity and they wanted to start treatment, although said I had time to go home and think about. I was told it was “small” in size. I was also told that they did see another cavity that had closed on its own, but they didn’t know how. After much prayer and thought, I chose not to treat and just have local Dr keep an eye on. I also had moved in the process and had to find new Dr. On my last check up after 9 months went by, still no change in cavity. I am choosing at this point not to treat unless absolutely necessary. I now have ID Dr and Pulmonologist who I am confident in! I also decided as much as I am glad I went to NJH, it is expensive to travel and not convenient to continue. I truly believe I can have treatment locally! I hope this helps.
We are all different with our diagnosis, and must be treated accordingly!

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Replies to "@dls224 I was diagnosed with Be/MAC in 2017. Last October I went to NJH for first..."

Thanks so much for sharing this!! I understand each of our cases are unique; but i do know I may not be able to handle the drugs and want to brace mentally and emotionally for that possibility.

Knowing what you know now about how you feel with your local care; would you make the trip to NJH had you never been ?

Glenda - our stories are very similar except I was already under treatment and NJH wanted to remove my RUL I'm seeking another opinion.