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Would like to hear from people with Sjogrens

Autoimmune Diseases | Last Active: Nov 14, 2023 | Replies (76)
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@becsbuddy

@mialola Here is a list of hospitals with good rheumatology departments. There are 2 in NYC and you may need to travel.
https://health.usnews.com/best-hospitals/rankings/rheumatology
You could also ask for names of rheumatologists on Long Island.
Did the doctor who diagnosed you not offer any treatment or referrals?

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Replies to "@mialola Here is a list of hospitals with good rheumatology departments. There are 2 in NYC..."
mialola | @mialola | Sep 3, 2023

No referrals

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Becky, Volunteer Mentor | @becsbuddy | Sep 3, 2023

@mialola You can just try calling each hospital and ask if they have someone who specializes in sjogrens? That’s what my husband had to do when I was admitted 5 years ago. No one in my area knew what was wrong so my husband called the close-by university hospital and asked for an appointment for me. The persons who answer the phone are real experts in helping people. Will you try calling tomorrow? I really want you to get some help and answers

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mialola | @mialola | Sep 4, 2023

I was not diagnosed I am not sure I have Sjogrens My blood work does not fit but I have high ANA tiger and dry eyes dry mouth dry hair

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