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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Apr 25 1:31pm | Replies (2916)

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@marinelastef

Oh God. Reading some of your stories are heartbreaking. I won’t even try to explain what I’m going through because you guys had done it better. I can only say that my soul is filled with grief and sadness for it is not fair people with this excruciating and invisible disease to suffer so much and agonize 24/7 without a treatment that can stop and alleviate this ordeal. Please, any doctors out there, ~nerve pain is the worst pain someone can go through, and most of us have in the most sensitive areas of the body,(nose, ears, neck, chest, esophagus, hands, feet, etc )~, we kindly ask the researchers to consider neurophaty their next approach and develop better treatments for suffers like us .
Thank you for caring !!
Marinelastef

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Replies to "Oh God. Reading some of your stories are heartbreaking. I won’t even try to explain what..."

Once we have doctors or their family members experience damage to the central nervous system (CNS) then there could be better treatments. The symptoms are never the same so they are hard to diagnose. One medication will help one person and not another. The medication may be the right one just not the dosage. We need more doctors who like solving problems, not just passing out pills. We are our own best advocate. Good luck.

mlmcg

Yes, agree. We need big time help from doctors, and more investigations than just throwing pills that make you sicker .