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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: 6 days ago | Replies (2973)

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@jackieorr

Hi, 30 years, has now taken over my life the last 4 years. Are there any new findings to help with progression and pain? Thanks, Jackie Franceschini

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Replies to "Hi, 30 years, has now taken over my life the last 4 years. Are there any..."

Hi Jackie @jackieorr, Welcome to Connect. It can be difficult living with neuropathy and worrying about what the future holds for us, especially the progression of the condition and worsening of the symptoms. It's really good to see that you are wanting to learn more about the condition and the research. Here are two of my favorite sites to learn about current treatments, living better with the condition and research being done.

--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
--- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview

Here are some discussions that might be of interest:
--- Contributing to Neuropathy research - Stuff That Works: https://connect.mayoclinic.org/discussion/getting-involved-in-hopes-of-finding-help/
--- Scientific research and scholarly papers on Small Fiber Neuropathy: https://connect.mayoclinic.org/discussion/scientific-research-and-scholarly-papers-on-small-fiber-neuropathy/.

I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/. Do you mind sharing a little more about your diagnosis and symptoms that bother you the most?

Hello, Jackie~
Sorry to read about your suffering.
This is really for the whole nation of folks dealing with the nightmare of PN.

I've been having my own battles with it and can "feel your pain".

I have gotten some relief from my vibration platform. Sitting down and just placing my feet in the walking mode space (lowest Galvanic) really feels good and that feeling of vibration lasts for a long time. I feel that anything that can get our blood way down there to the tiniest of capillaries is a good thing.

Buyers beware though...some of these EMS pads are priced over the moon...check it out though. I haven't seen any mention of EMS for PN on any of the threads.

Best to you all. Bunky