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Fixations in early dementia?

Caregivers: Dementia | Last Active: Sep 5, 2023 | Replies (11)

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@lena0825

I am in the same boat as you are. My loved one was diagnosed with Lewy Body Dementia (LBD) about 3 years ago after exhibiting symptoms (unknown to us) for nearly 2 years before & nearly a year of searching for a diagnosis. Since LBD does not have distinct stages, I can't characterize where he stands in terms of its progress. However, he has fixated on various things, mostly personal items: his wallet, cell phone, house keys, money, etc., none o which he really needs. He also focuses on his glasses which he constantly misplaces & needs for reading as well on brushing his teeth & dentist appointments of all things. He does not fixate on other appointments though. There are other fixations too numerous to list. But they come & go on a periodic basis. Like you, I find it extremely frustrating & distressing. His neurologist basically thinks that as long as his fixations are harmless to not worry about them. But that does not help with my frustrations or the effort it takes not to "blow up" about the near constant fixations occasionally.

My husband is on carbido levodopa, quetiapine (Seroquel), rivastigmine (Exelon) & pimavanserin (Nuplazid). The neurologist has not mentioned adding anything for the fixations.

So, yes, others, at least me, experience these things in their loved one. And like you, I too would like some answers.

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Replies to "I am in the same boat as you are. My loved one was diagnosed with Lewy..."

My husband also has lbd. My sons came and helped clean out his 4 stall garage and we filled a 30 yd dumpster. He could not park his own car in our house garage because he had too much junk in other garage. I asked boys to come help as I was not going to shovel out his car all winter again. He sleeps. Til noon. So its always me. He adamant everything he had in garage was worth hundreds of dollars. My one son would distract him with questions and my other son and myself would throw in dumpster. Most was covered in mouse droppings and had mouse nests in!!!
Now he wants to know where all his “valuables” are!? He never helped carry anything to dumpster. Idk if he even realizes the extreme immense of work we all did.
Part if the disease nut frustrating.