lorkem258 Just let him know he is not alone in the way he feels. Mayo Clinic Connect (MCC) is an excellent source of information and to hear from others. Another individual on MCC gave me web sites for John Hopkins information. It was excellent. I had just about gone on every major source of medical information researching this subject. However had not seen the John Hopkins information about PSA testing and levels.

Are you 4 hours from Mayo Clinic in Jacksonville from north or south? If you are north then have you considered UFPTI? Even if you don't want to consider UFPTI you can asked for a information packet from them. They will fed ex to you. It has two excellent books (that everyone should read if you have had or have prostrate cancer), complete information on proton radiation, research done on prostrate cancer and treatments (all types). It is lot of information. The books alone were great sources of information and the individual stories of men who have had prostrate cancer and the treatments they got.

You can send them his medical records (they will handle this just have to sign forms) and they will review your case to see if you are a candidate for UFPTI and then if yes set you up for a consultation if you want to proceed with them.

You could also then do same for Mayo Clinic Jacksonville. They do not have proton radiation but an excellent radiology/oncology department and photon radiation treatment program along with surgery.

I think I read his Gleason score was 7 (3+4). That is not high but intermediate. I would asked for a Decipher test. The Decipher test is a genetic test of the cancer and rating. Most radiologist/oncologist will also want to do PET scans and bone scans.

How old is your husband now? It sounds like your urologist was recommending robotic surgery is that correct? Again I want to be careful here and not imply I have medical expertise of what to do but I would definitely get second opinions.

Did the urologist tell him that almost all prostrate cancers are very slow growing. Your husband should know this. It is very different type cancer than tumor types like breast cancer. My urologist told me I would die from something else before my prostrate cancer killed me even if I did not get treatments. He was not recommending not getting it treated but the facts about prostrate cancer and survival rates especially when cancer is initially found confined to prostrate.

I was not give option for surgery because of my heart condition and age. I would have not chosen it versus radiation anyway. I wanted to be able to keep exercising and get back to my Sprint Triathlons as soon as I could. My exercise routine (swim, bike, jog/walk) was and is important to me not only physically but mentally.

I was able to do my exercise routine throughout my treatments with exception of bike riding (don't want you to bike). Yes did get a little fatigued, and had to go to bathroom more often, but worked through it. I was told, and I agree, your physical fitness before, during and after treatments goes a long way to success.