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Newly diagnosed questions

Prostate Cancer | Last Active: Sep 5, 2023 | Replies (22)

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@jc76

So sorry to hear this. What a lot to go through. Getting the news is overwhelming. Do you have any prostrate cancer support groups in your area? Do you live close to any of the Mayo locations?

I am not a doctor but you say he has a serious heart condition but his Dr. is recommending radical prostectomy? The oncologist/radiologist at Mayo Jacksonville and the oncologist/radiologist at UFPTI would not consider recommending surgery to me because of my heart condition.

I depend on my ICD/pacemaker also. I have a left bundle branch block and 3 areas in LV sending out PVCs. Although my heart will self pace it will go down sharply if I did not have the pacemaker especially when I take my medications. So pacemaker keeps it up and helps with pacing as I have tons of PVCs. The ICD part has saved my life about a dozen times. Over the years I have had one (since 2006) it has gone off about 12 times. Without it I would not be here.
Mayo's Pace Clinic and my electrophysiolgist are outstanding and we fine tune and add medications to address issues. I was doing Sprint Triathlons prior to my radiation treatments and have been training to do them again. I have my first one this year in November. I have been an exerciser all my life. It is why my cardiologist say I do so well even with heart failure.

I would recommend getting second and third opinions. I did and many others using Mayo Clinic Connect have commented they also have done this.

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Replies to "So sorry to hear this. What a lot to go through. Getting the news is overwhelming...."

His heart was perfectly fine had it not been for the birth defect if his aorta valve. He has a porcine valve now. He too was doing savage races and was big into crossfit. He did very Well with the surgeries because of that. His urologist did say he would have to get cardiac clearance but being robotic didn’t feel it would be an issue. We are about 4 hours from Mayo Clinic in Florida. He is very much “wanting to get it out” as just the thought of it being there scares him a lot. It’s all still so new. I did request appointment with a radiologist oncologist to have him hear other choices.