← Return to pain on right side of body only

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pain on right side of body only

Chronic Pain | Last Active: Sep 3, 2023 | Replies (8)

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@leigh123

Sorry you’re going through this.
Don’t know if I can be of any help but I had a c6/7 fusion 9mths ago, pain before surgery was limited to my neck and right arm, since surgery my entire right side is affected including my thoracic back.
I have a constant tight burning shooting sensation, and it is either super sensitive to touch or feels pins and needles numb, both my right hand and right foot change colour and temperature either feeling burning hot or frostbiten cold.
I have lost extension of my right arm and shoulder and have troubles straightening my right leg, my foot feels heavy as though it isn’t connecting to the ground.
I’ve seen 2 different neurosurgeons, a neurologist and 2 pain management specialists, so far the only diagnosis I have received is chronic regional pain syndrome.
Is this something your drs have looked into?

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Replies to "Sorry you’re going through this. Don’t know if I can be of any help but I..."

Hello,
Thank you for responding to my post. I am really sorry about your pain.
I have seen 2 neurologists who both stated that my symptoms don't align with anything neurological.
My husband and I think it could be because it's a very odd think that only affects the right side of my body and is aggrevated with sitting or laying on the left side. I don't have tingling or burning sensations and I guess if you don't present those symptoms it can't be neurological
I think the diagnosis of "chronic regional pain syndrome" is something that even I could give someone, and it doesn't really explain much.
What triggered the beggining of your pain?
I am also trying to become a patient at the mayo clinic, but I think that is going to take some time.
Don't give up on yourself, you will find an answer.