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Pineal Cyst: What symptoms led to your diagnosis?
Brain Tumor | Last Active: 4 days ago | Replies (42)Comment receiving replies
Hello, I'm new here as well and have not heard back from anyone but can do my best to respond to your post. My wife of 24 years has expressed your same frustration. My symptoms have been going on for six years and are not as extreme in regards to dropping things but my fatigue is a daily battle and I struggle every day to present a positive upbeat partner to my spouse with some success and some down times. My larger health has suffered in the same manner that I was always outside and doing things and very active. Take heart and know it can get better. I've worked hard to accept what I can and work on the rest. I do take medication for the chronic fatigue and still see doctors (both medical and psychological) to monitor my cyst and depression (another byproduct) each year. I also lost my hearing in my right ear when I got my first vaccine shot and I'm not too sure the two are not related. This also adds to my fatigue. I guess all I can add is don't give up. With patience and time I have become more active again but it takes work. Every day is a challenge but I do my best and work hard to share with my wife (I did not always as I'm the type to keep my mouth shut and power through things - no pain no gain etc). The best advice I can give is be open and honest. Our relationship has been challenged but has also grown and prospered. I wish you both the best. John
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HI
Can I ask how did your cyst showed up? Was it sudden? What are the doctors telling you.?
Do you have seizures? This is my speculation, but I think that this cyst came on due to lack of oxygen to the brain. I know that the medical staff say that the cyst is benign and usually doesn't cause problems, I would like to know what kind of problems? Our life has been put on hold. From what I have read, there are doctors that specialize in pineal cysts. That is what I'm trying to get in touch with a head trauma specialist. Just recently, my husband went for a C & P Exam (he is a veteran and he trying to get disability benefits). Anyway, one of his claims that he filed was sleep apnea/narcolepsy. This doctor dealt with Trauma Brain Injury. We told the doctor that he had this cyst, he automatically knew all about the cyst. and of course, it would be causing his sleep pattern. But I couldn't ask him any questions. So that's one of my goals is to find that kind of doctor. Since it is neurological, he has to be referred to that kind of doctor. I read about doctors located in North Carolina, Texas and in Oregon. I have read that surgery has been successful. At least this doctor could answer some questions that we are inquiring about. I'm sorry that you are going through mess. At least, I'm glad there are other people out there with same issues. I found a support group on Pineal Cyst for him on Facebook. At least he doesn't feel alone and hopefully his depression doesn't get worse. Thank you for sharing and it's nice to find support. Again, thank you.