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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 26, 2024 | Replies (3053)
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@julchilds

I was so surprised to hear others with restless leg syndrome and peripheral neuropathy! I’ve had RLS since I was very young, but peripheral neuropathy is a new and terrible thing for me. I’m 59 and thinking if it’s this bad now....?

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Replies to "I was so surprised to hear others with restless leg syndrome and peripheral neuropathy! I’ve had..."
johnhans | @johnhans | Jul 30, 2018

I have had RLS and neuropathy, but the RLS mostly went away when I was treated for Obstructive Sleep Apnea. If you felt tired and easily fall asleep when sitting, you might want to ask your doctor about getting tested for sleep apnea. I think my RLS comes from my anxiety-my legs were always moving when I sat. I now have eliminated the benzodiazepene and gotten a medication increase so my anxiety has been reduced to the point where with the sleep apnea treatment I no longer have the anxiety.

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John, Volunteer Mentor | @johnbishop | Jul 30, 2018

@julchilds I have had small fiber peripheral neuropathy for over 20+ years and I'm 75 now. It doesn't normally spread fast but each of us is affected differently - non medically speaking person here.

I agree with @johnhans about getting checked for sleep apnea. Last night I had an overnight sleep apnea test and was surprised to learn how many people have sleep apnea and don't even know it. The doctor also mentioned he saw some leg movement in the test that he thought could be RLS. If you also have chronic fatigue or are tired a lot and low energy, you might want to discuss a sleep apnea test with them.

John

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