← Return to GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

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@johnbishop

Hello @joan7, Welcome to Connect. Love the photos of your beautiful pups. They definitely put a smile on my face. You will notice that we moved your post to an existing discussion on the same topic so that you can meet @tsc, @emo, @marilyncarkner and others. If you click the link below it will take you to the beginning of the discussion where you can read what others have shared.
--- GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica): https://connect.mayoclinic.org/discussion/temporal-arteritis-1/.

I think it's good that you are having a biopsy to test for GCA. Can you provide an update after you know the results of the biopsy?

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Replies to "Hello @joan7, Welcome to Connect. Love the photos of your beautiful pups. They definitely put a..."

Hi @joan7, I had a temporal artery biopsy done on my right side - since that's where my symptoms were. I had symptoms of PMR, and later GCA, for a year before disagnosis, following an ankle injury. The biopsy was positive - I was put on 40 mg of prednisone, tapering down 5mg every two weeks.
The rheumatologist also sent me for a Dexa scan, I guess because prednisone weakens the bones. I hadn't had one for ten years and I was diagnosed with osteoporosis as well. That concerned me more than the GCA, and I went on Alendronate.
I found it difficult to sleep on the higher doses of prednisone. It gave me lots of energy and a motor mouth. It took care of most of my symptoms. I just continued to exercise, with care and targeted for Osteoporosis, and eat well, no processed foods. I used an infrared lamp and infrared heating pad for comfort when I needed it.
Prednisone took care of the GCA and I' ve been off it for 10 months.
If you like Yoga, Dr. Lauren Fishman has a program that builds bone density, 12 Poses vs Osteoporosis and Dr. Alyssa Kuhn, has exercise programs for osteoporosis and arthritis. All the videos are available on YouTube.
My mother-in-law got GCA in her late 80s and lived to be nearly 100.
On thing my rheumatologist prescribed - a low dose aspirin everyday as people with GCA can later get aortic aneurysms.
I wish you the best.

I definitely will provide an update after my biopsy results become available. Thank you so much for the info; it has been very helpful. Talk soon!