← Return to MAC/NTM is Different for Everyone, Treatment might be different too

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@healthybon

I haven’t read many success stories, that is not to say there haven’t been. It seems that a lot of people trudge through very difficult side effects, clear, then it comes back. I’m sure there are many different scenarios to this topic.
I think it comes down to an individual decision, how disruptive the side effects are, the age and physical condition of the individual, and where they are at in their diagnosis etc.
If a person is riddled with untenable side effects on a daily basis that exclude them from quality of life and enjoying their day, then there is something to think about..for me that is. Another factor is other or existing conditions too that play in the ability to tolerate the side effects. I wake up in excruciating body pain every single day from fibromyalgia….that alone is hard to handle….throw meds into the mix and it’s like torture to me. God bless those who can handle the antibiotics…….

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Replies to "I haven’t read many success stories, that is not to say there haven’t been. It seems..."

yes understand - since I've been taking the antibiotics my RA pain is 100% worse - can't sleep thru the pain after 4 hours have to get up - I believe quality is best - I may stop them and go back to my stronger medication for RA. I cannot live like this.

Hi, I'm waiting on the results of my Bronchoscopy . Dr. suspects MAC. I had TB as a kid but was told I was strong enough to fight it off but it left a scar on my lung and left me apparently susceptible to getting MAC. I will be 75 in October and am otherwise very healthy. I have pretty much decided that I will not take the meds if I have MAC. My Dr. told me that the side effects are worse than the levothyroxine I was on for a week recently . I have read that once diagnosed with MAC you have 1 to 5 years to live, so I would prefer to live out those years with no adverse side effects and accept whatever comes my way.