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@madijen

I have the MAI type as well or that was what I was diagnosed with at first. MAC/MAI is slow growing so not a big rush to get in somewhere. However, I can understand your concern and wanting to find out what is best to do. Where do you live and are you located near any of big treatment facilities? If I can answer any questions feel free to ask and you can always private message me on here. Good luck and let us know how things go.

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Replies to "I have the MAI type as well or that was what I was diagnosed with at..."

I’m in S Florida; but very willing and able to travel by car anywhere I need to!

Thank you so much for your response! I hope you’re feeling well at this time.

I will definitely post more as I know more going on and have solid direction in place.

Oh and I’m sorry I didn’t respond more regarding centers near me; I am near Mayo in Jax (5 hours). I did tele consult with Dr Johnson there and I very much like her! Just cannot seem to get the follow up appts she ordered actually scheduled!

So I’m just doing all my due diligence as fast as I can in the meantime and finding other places that I may be able to get into sooner etc.