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Just diagnosed with pancreatic NET stage 1

Neuroendocrine Tumors (NETs) | Last Active: 5 hours ago | Replies (148)
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@pavlina60

Same here - PNET grade 2, Stage 4. Had surgery for removal of pancreatic tail, spleen, gallbladder and part of my stomach. On Lanreotide since March. One CT scan 3 mo later showed no new growth. Next on is on Sept.19. Fingers crossed Lan still works. I have some side effects like insomnia and hairloss, but other tha that still functioning well on a daily basis🦓💜

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Replies to "Same here - PNET grade 2, Stage 4. Had surgery for removal of pancreatic tail, spleen,..."
Teresa, Volunteer Mentor | @hopeful33250 | Sep 2, 2023

I always appreciate you sharing your journey, @pavlina60. It offers encouragement and support to those "newbies" with NETs.

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dbamos1945 | @dbamos1945 | Sep 2, 2023

Pavlina60: I sympathize with your insomnia… been there! My immediate solution is OTC Spring Valley extra strength 10mg adult Melatonin sleep support GUMMY!!! It is not logical but I chew 2 and sleep in 1/2 hr!
I hope you try it my friend. Only the best for you!

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