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Diagnosed with sarcoma? Let's share
Sarcoma | Last Active: 2 days ago | Replies (808)Comment receiving replies
My neice as diagnosed with synovial sarcoma three years ago. She is now thirty. Did the t cell trial at MD Anderson. Looked like a miracle for a few months, then it was bag. Tumors are around heart and lung. She went back to Israel with her parents over a year ago and has been on low dose chemo, in and out of the hospital every other week. She recently had another T cell trial which apparently failed because my cousin, herbfather wrote me last night that scans show more tumors and others grown. The doctor told him she only has a few months. Anyone have anything we haven't done or thought of.? The doctors last year at MD Anderson told her she only had a few weeks to live, but the low dose chemo in Israel showed that wasn't true. If only AI was faster in changing all this.
Any ideas are greatly appreciated. Thanks
Replies to "My neice as diagnosed with synovial sarcoma three years ago. She is now thirty. Did the..."
I was recently diagnosed with Synovial Sarcoma. I had one tumor in my left lung and I have a large tumor in my mediastinum (near my heart). The doctors are trying to determine a treatment plan to remove the large tumor. The surgeon who removed the small tumor said that he would not operate on me to remove the larger tumor because the surgery would be too risky. I hope your niece get better with the treatments she is taking. I am in a waiting stage. I don't know if they are going to operate or give me treatments first. It took them three months to determine what type of cancer I had. Blessings to you and your family.
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Check out books: Radical Remission by Kelly A Turner, PhD (very inspiring stories of people who had stage 4 and survived) with description of common things the 1000 survivors all do. Good luck and continue to find peace and joy!