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Anyone been to Dr Olivier or Dr Daniels at UNC?

MAC & Bronchiectasis | Last Active: Sep 3, 2023 | Replies (15)
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@madijen

I have only seen Dr. Olivier once. He changed my saline solution from 3% to 7% and I have orders at Labcorp for sputum sample testing. I have a sample in now that they are culturing which takes weeks. I'm not good at producing a specimen so we shall see. I've always had bronchoscopy done. We have been holding off going on the antibiotics again. I did have a positive culture for MAC in 2022 when I had pneumonia but haven't had a culture done until this current one. I do not have cavities but have lost lung function that's why my pulmonary dr sent me to UNCCH. I have Medicare and a supplemental insurance so my visit was covered. He ran lots of blood tests. With cavities it would be best to see someone. Do you have a current pulmonary or ID dr that you see?

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Replies to "I have only seen Dr. Olivier once. He changed my saline solution from 3% to 7%..."
dls224 | @dls224 | Sep 2, 2023

I have a local pulmonologist I’ve had a bronchoscopy with already in early August. I’ve only just found out how serious a situation this was! I had been following with scans since march 2022 but was told it wasn’t serious until July of this year with my last scan when I was told it was bronchiectasis as well as a cavity and most likely NTM!!

So I switched Drs immediately; did sputum samples and a bronchoscopy both asap with him.

Just found out it’s intracellulare type MAC yesterday but those are the only results I have so far.

With the cavity I am assuming most will want to treat so trying to get into good hands before I consider that but I know I may have to.

I don’t have many symptoms other than heaviness when I take a deep breath in the mornings usually. The only real coughing I do is when I do the airway clearance twice a day. If I didn’t do it I would feel pretty much my normal.

I hope your cultures come back negative and you don’t require anything at this time!

If I can’t get into NJH until December or next year I will most likely go to Mayo (if I finally get my appts the dr ordered for me scheduled there) or UNC.

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