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Struggling with Tymlos medicine

Osteoporosis & Bone Health | Last Active: Jun 4 11:47pm | Replies (90)

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@gently

darla1, some patients start at a low dose and reach 8 clicks after several weeks, giving their body time to adjust, some stay on 6 clicks for the duration, some simply can't tolerate Tymlos. You might be allergic to the preservative in Tymlos. One patient after quitting the drug said sweetly, "I started laughing again."
We are supposed to do what our physicians tell us, but If you can't contact your physician over this holiday, I'd suggest that you take a drug holiday.
There are other drugs.
You are taking the same dose that 160, 170 180 lb people are taking. I think that we (100lbs here, yes soaking wet) are over dosed.
When I decided on Forteo 5 months ago, one consideration is that the Tymlos dose is 4x the medication that is in Forteo. And the gains are similar enough that both companies can claim higher gains It makes sense to me that with a higher dose there would be more side effect. Another consideration was the preservative in Tymlos.
I don't have any side effects with Forteo. Of course that doesn't mean you wouldn't. Some can't tolerate Forteo and are fine on Tymlos.
I admire your fortitude. But I don't think that Tymlos is the drug for you. Some people suffer through and have good gains, others suffer through and have no gains. If Tymlos were your only choice it might be worth the suffering.
I'm glad you are seeing your physisican soon.

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Replies to "darla1, some patients start at a low dose and reach 8 clicks after several weeks, giving..."

I appreciate you advice as well, and did find the full dose for someone my size a bit too much, and wondered if that was taken into consideration by my doctor , which will be my first question when I see him next week. Thank you so much for your response, it has given me a lot to think about

I totally agree. The only way I can tolerate Tymlos is to ramp up the dose. I started at 2 clicks and am up to 5 with some but minimal side effects that I can easily manage with nausea medication, occasional pain pills and lots and lots of water. I feel so sad for people who were not advised to use Tymlos this way because it really works.
Good luck to everyone on Tymlos.