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Just diagnosed with pancreatic NET stage 1

Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)

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@dbamos1945

I am Small Intestine primary with Liver metastases… Grade 1; Stage 4. Every person with NET diagnosis is different. I’ve been told by drs that although my liver has many areas of concern that my liver blood tests show “normal” liver function and since our livers are quite large that enough of my liver is ok for me to function well. I hope this relieves your mind from “doom and gloom” thoughts. Be your best!

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Replies to "I am Small Intestine primary with Liver metastases… Grade 1; Stage 4. Every person with NET..."

Same here - PNET grade 2, Stage 4. Had surgery for removal of pancreatic tail, spleen, gallbladder and part of my stomach. On Lanreotide since March. One CT scan 3 mo later showed no new growth. Next on is on Sept.19. Fingers crossed Lan still works. I have some side effects like insomnia and hairloss, but other tha that still functioning well on a daily basis🦓💜