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DiscussionJust diagnosed with pancreatic NET stage 1
Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)Comment receiving replies
Replies to "I am Small Intestine primary with Liver metastases… Grade 1; Stage 4. Every person with NET..."
Same here - PNET grade 2, Stage 4. Had surgery for removal of pancreatic tail, spleen, gallbladder and part of my stomach. On Lanreotide since March. One CT scan 3 mo later showed no new growth. Next on is on Sept.19. Fingers crossed Lan still works. I have some side effects like insomnia and hairloss, but other tha that still functioning well on a daily basis🦓💜