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PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 8:00am | Replies (468)

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@johnbishop

Hi @napapos, I hope you don't mind but I thought I would reply to your private message in the discussion where you posted about discussing your prednisone dosage at your upcoming appointment with the rheumatologist. I think others will be interested in your update also.

*********** Update from @napapos ***********
So now I am 4 months in since diagnosis.
On 4-27-23 doctor put me on 10 mg pred for 2 weeks, 7.5 mg for two weeks, then 5 mg for four weeks. On 6-22-23, 7.5 for two weeks, then 5 mg for four weeks. My PMR pain level was at 8 in the beginning . Within a few days pain was at 2-3/10. I am on my third taper but he want me to stay on the 5 mg for three months, no taper, side dressing with 7.5 mg meloxicam in the pm per follow up appointment on 8-30-23 . Surprisingly my pain level is stable at 1.5-2.5/10 during the day. Mornings are around 3-4/10. No more Advil. Three 650mg Tylenol three times a day. Hand stiffness is a little better but can’t hope for much with the osteoarthritis. I am using hand tension grippers daily at about 60 reps. Will let you know later if I feel they are helpful or harmful. Today, 9-1-23 was the first day of my garden activity in over two weeks. I am eating an anti inflammatory diet, lots of fish and veggies, no processed foods and little sugar. I think it helps. I just pray tomorrow is not payback time. Wishing everyone wellness and blessings.
***********************

It sounds like you are doing really good with the activity and anti-inflammatory diet. Eliminating most of my sugar intake was really helpful for me as well. Did I read correctly that you are taking nine 650mg Tylenol a day (three 650mg capsules three times a day)?
That adds up to 5850mg daily dose which is much higher than recommended unless you have discussed it with your doctor.

Here is some information on the topic:
"Tylenol is relatively safe when you take the recommended dose. In general, adults can take between 650 milligrams (mg) and 1,000 mg of acetaminophen every 4 to 6 hours. The FDA recommends that an adult shouldn't take more than 3,000 mg of acetaminophen per day unless directed otherwise by their healthcare professional."
--- Is It Dangerous to Take Too Much Tylenol?
https://www.healthline.com/health/can-tylenol-kill-you
I only took Tylenol once in awhile when my PMR was active and mostly for headaches. Have you discussed your Tylenol use with your doctor or rheumatologist?

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Replies to "Hi @napapos, I hope you don't mind but I thought I would reply to your private..."

@johnbishop
No problem sharing my post. I’m slow. Not sure how to post open messages.
And no , I am only taking three, 650 mg Tylenol per day!
Blessings.

It is interesting that your doctor had you take meloxicam with your prednisone because mine told me to stop taking it. It seems there is a wide variation of treatments with different opinions on what you can take with what. I was taking meloxicam for my RA and osteoarthritis so would love to be able to take that and reduce my prednisone. Has anyone else done both? I will reach out to my doctor and see what she says. Thanks for the info and for sharing your post!
Kathy