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@peggy87

@deedee12 I would like to speak with you more about your fusions and current situation. I had Harrington rod placed in 1982 for scoliosis from T3 to L1, C7-T1 in 2020 and 2021, now scheduled for "revision" of the thoracic fusion to extend to S1 and fuse SI joints at the same time. I am not able to walk, sit, or stand for any length of time due to sciatic nerve, hip, leg, and sacrum burning, shooting pains and numbness (worse when I lie down). I continue to have issues with my cervical spine too as only the minimal fix was done at the time. Same here at the age of 53 have DDD, scoliosis, spondylolisthesis, etc as well as RA, osteoarthritis, hypothyroid. I have enjoyed leading an active lifestyle all along and am a concerned about what life will be like after this. Any tips, pros, cons, sharing of what you ARE able to do still would be greatly appreciated!!!
@peggy87

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Replies to "@deedee12 I would like to speak with you more about your fusions and current situation. I..."

We are the same in some areas. I had my Harrington rods put in when I was 14. I had a 62° curve which they got down to 35°. I continued with lumbar issues. In 1989 after 6 surgeries, they completed a 2 part surgery and and then I was fused T2-S1 and screwed into each side in the pelvic bone (3 screws each side). I really did not have any issues until 2018. My cervical had developed degenerative issues. They did ACDF C3-C7. I was still having cervical pain and they related it to flat back. In 4/2021 I had a lumbar osteotomy to correct my sagittal balance. They did not fuse my si joints at that time and I believe they should have. The SI joints were fused 2/2022 and 4/2022. I still had cervical pain and si joint pain. At this time I researched several doctors, I received 3 opinions. In my cervical, C3-5 did not fuse and also my SI joints and fractured screws in my lumbar. In 3/2023, I had a neurosurgeon whom did a posterior fusion C3-5. This has helped tremendously with my cervical. In April I had a call from Mayo Clinic that the accepted my complex cases. I am now working with a group of doctors with my SI joints and degenerative hips. I am 5 weeks post op with my right hip and going well. I have left hip replacement schedule for 11/16 and then revision on si joints. Long process bit feel really good about direction. Let me know when you want to chat.