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Stiff Heart - diastolic heart failure
Heart & Blood Health | Last Active: Mar 3 10:16am | Replies (214)Comment receiving replies
Hello, I'm 41 years old and the mother of an 8 month old daughter and a 25 year old son, I recently was diagnosed with diastolic heart failure. I'm scared and trying to find as much info as possible. I have had heart flutters all my life and was diagnosed with mitral valve prolapse in my teen years. When I was pregnant with my daughter I wore a heart monitor for two weeks because my heart was doing PVCs so much. I'm just worried I want be around to see my daughter grow up, I'm very depressed and worried. When I saw your post about living for many years with this disease it gave me a spark of hope. I hope you are still doing well too.
Maddy
Replies to "Hello, I'm 41 years old and the mother of an 8 month old daughter and a..."
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Hello @sweetmaddy1 and welcome to Mayo Clinic Connect. I am glad that you found this forum. It is a great place to learn about the experiences of others and be supported and encouraged.
I see that you've been diagnosed with diastolic heart failure. I suppose you have had an echocardiogram. If so, was the number for the ejection fraction mentioned in the report? It might be listed as EF. This is an important number that determines the functioning of the heart.
It looks like you have also had some heart rhythm problems as well. Are you seeing a cardiologist who specializes in heart rhythm problems? These cardiologists are referred to as cardiac electrophysiologists.
We have several discussions on Connect for heart rhythm. Here is a link specifically devoted to PACS and PVCs. Here you can connect with others and learn more about their experiences.
https://connect.mayoclinic.org/discussion/living-with-pacs-and-pvcs/
Also, here is some information from the Mayo Clinic website that you might find helpful.
https://www.mayoclinic.org/departments-centers/heart-rhythm-clinic/overview/ovc-20442477
I'm wondering what type of tests your current cardiology team have performed. Are you currently taking meds? What are your most difficult symptoms right now?