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Just diagnosed with pancreatic NET stage 1

Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)
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@meleelee1

I have a 6.6mm net on the tail of my pancreas. They have been watching it for 1.5 yrs. The symptoms are not good, flushing, itching,feeling full and hungry at the same time. Noone wants to talk. They found a thymic cysts on my mediastinum and removed it. Thank God it was benign. I really can't stand the waiting

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Replies to "I have a 6.6mm net on the tail of my pancreas. They have been watching it..."
Teresa, Volunteer Mentor | @hopeful33250 | Sep 1, 2023

Hello @meleelee1

I feel concerned for you when you say, "Noone wants to talk." Are you referring to your medical team? If so, it would be good to find a NET specialist who is willing to talk with you about your options for treatment. If you are able to consult with a Mayo NET specialist either in-person or virtually, here is information on obtaining an appointment. http://mayocl.in/1mtmR63.

If an appointment at Mayo is not an option for you, here are names of NET specialists world-wide with the U.S. doctors listed by state,
https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
It looks like the pancreatic NET was diagnosed over a year ago. Has it changed in size since the original diagnosis?

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