← Return to Trigeminal Neuralgia, Sjogrens Disease or something else?

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@dianaislooking

Yes, my Sjogrens did that to me. Severe migraine, face pain which led to vomiting and days of just wanting it all to be over. Wound up in the ER for dehydration, malnourishion, due to vomiting, and after 5 days of more pain than I could handle. CT, and MRI done. No problem found to explain until they found my CNS Sjogrens ( central nervous system) had again taken off with ith new lesions. Placed back on steroids to try to get it under control. This whole dx threw me for a loop. Almost unheard of, only one in my area that is known of.
I had been diagnosed with duel Sjogrens and MS for many years. My new neurologist as of less than 2 years discovered an identifying mark on my MRI along with massive network of demilatation, told him I didn't have MS but this other big nightmare. The recent flair of my Sjogrens honed in on my most recent trauma place and ran with it. Sjogrens is the great pretender. I will mimic and intensify anything. Pseudo gout, rhumatoid arthritis, and many many more. I said a prayer for your family and encourage you to keep looking for answers. Be her advocate and never give up. It took them over 20 years, but, changing to a more caring and persistent neurologist was key. My old one would refuse to do MRIs, saying it was not my MS, and all I needed was PT.
Good luck and gental hugs

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Replies to "Yes, my Sjogrens did that to me. Severe migraine, face pain which led to vomiting and..."

I'm 69 years old and I'm just tired. 43 -year history of MS, and more recently TN, arthritis, long Covid, osteoporosis, fibromyalgia, & a partridge in a pear tree.
I've always wondered about Sjogren's due to history of dry eye & weird pains and sensations in jaw and neck never quite explained.
Anyway at this point, what's the difference? Another label in my chart. Another " We can't fix it" disease! ☹️
I am happy for this website and others , and for people willing to share their experience, advice and to listen.
Thanx.