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Living with inoperable pancreatic cancer

Pancreatic Cancer | Last Active: Sep 12, 2023 | Replies (43)

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@ajh5285

I'm not sure it it's okay to chime in here, but I understand what you're saying. I'm trying to be patient with all the very practical requests my husband is making of me so that things are easier for him once I'm gone, whether it's a positive change resulting from my planned move to a nearby state to be close to family and be in a facility that looks as if it should be more supportive than our current very isolated living situation. Or whether I'm carried off suddenly, as my oncologist informed as part of his "due diligence," some time soon.
I'm also trying to take it easy physically since each visit out for some medical appointment, and associated car ride takes it out of me.
And I'm plagued with various dietary cravings that create complications when I have a rummage in the cupboards and find food that I know isn't good for me but that I find irresistible (tonight it was two Christmas Lindt milk chocolate balls that were left from before I retired maybe a decade ago). Earlier it was salt.
Honestly, this is all so hard for me and those around me.
So know that I'll keep you in my thoughts and what pass for prayers.

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Replies to "I'm not sure it it's okay to chime in here, but I understand what you're saying...."

I'm glad you responded and let some of your frustrations out. I feel for you having to think of a move and also talking with your husband about serious things. It is good that you and your husband are talking about things because it may help him in the future & also give him more memories of you. I hope you find a facility that will have your best interest at heart. I do understand living isolated. I live in the country, rural area with farms and some houses around, not saying this is your situation. That's kinda scary thinking your oncologist could have you "whisked away". I hope that doesn't happen, this should be your choices & decisions, even if your oncologist means well. Being close to family is a good thing too. I can appreciate how going anywhere can take it out of you. That's smart to take it easy on your self. I thought I was the only one rifling through cabinets looking for chocolate or whatever! It's strange, one week I want sweets, the next week it's chips, this week I couldn't get enough of tomatoes, weird! I can't imagine how hard this is for you and I would never say I know how you feel because I don't. My tumor in the tail is about 3.5 centimeters & the 2 lesions on my liver aren't that large, so at this time I'm stable, but who knows what the future holds. I hope you don't have a lot of pain because that's what I saw with my mom & her gallbladder cancer. I saw your other message. That's wonderful to have soothing music to help reduce stress! I have always liked Handel's Water Music and of course, The Messiah. One of my favorite experiences was going to a Messiah Sing A Long with part of the Milwaukee Symphony & soloists. This was at the Milwaukee PAC & altos, sopranos, tenors & bass sat in assigned areas of the auditorium. It gave me goose bumps because those of us in the auditorium sang the choir parts with the Symphony accompanying us & the soloists. It sounded so amazing and my voice was gone the next day! I have also found Vivaldi very good also but you need to like violins. I'm glad you have been able to find some things to keep your mind at peace or at least take your mind off of your situation. Thank you also for you good thoughts & prayers. Wishing you well and thinking of you. Take care.