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Alguien con síndrome de fanconi??

Kidney & Bladder | Last Active: Sep 3, 2023 | Replies (3)

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@garu26

@gingerw ,Gracias por tu respuesta. Somos de Argentina, y ya no sabemos donde buscar.. Nos ayudaría saber si existe en algún lugar del mundo, un médico con experiencia en esa condición.

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Replies to "@gingerw ,Gracias por tu respuesta. Somos de Argentina, y ya no sabemos donde buscar.. Nos ayudaría..."

@garu26 Mayo Clinic has three campuses in the United States, plus international appointment offices. These offices can assist you in contacting and getting an appointment with Mayo Clinic https://www.mayoclinic.org/departments-centers/international/appointments
To speak with them in the United States directly, you can use this link: http://mayocl.in/1mtmR63

Seeing that fanconi syndrome is considered a kidney issue, I think speaking to a highly qualified kidney specialist [nephrologist] may be your best option.
Ginger

Cleveland Clinic offers this detailed information about fanconi syndrome: https://my.clevelandclinic.org/health/diseases/24233-fanconi-syndrome