← Return to Questions on IVIg treatment for what I have: Axonal sensory-motor

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@johnbishop

Welcome @smslee, Sorry to hear that your doctor has not offered or suggested any treatment to help with your symptoms. I also have trouble walking very far with my idiopathic small fiber PN, lymphedema in my legs and a few other ailments. My lymphedema is controlled fairly well with knee high compression socks and I only have numbness with my neuropathy so can't imagine adding the burning into my symptoms. I'm not sure your symptoms are all due to the neuropathy since both lymphedema and venous insufficiency may also be part of the problem. Here's some information on both conditions that might explain it better.

"Chronic venous insufficiency signs and symptoms include: Achy or tired legs. Burning, tingling or “pins and needles” sensation in your legs. Cramping in your legs at night."
--- Chronic Venous Insufficiency (CVI) - Cleveland Clinic: https://my.clevelandclinic.org/health/diseases/16872-chronic-venous-insufficiency-cvi.

"Decreased physical function, dyspnea, and fatigue occurs frequently in patients with lower limb lymphedema. Nearly a third of patients with lower limb lymphedema experienced three of more physical symptoms,17 and these symptoms are exacerbated by prolonged standing, heat, and walking."
--- Symptom Frequency, Intensity, and Distress in Patients with Lower Limb Lymphedema:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4926205/.
Can you provide an update when you get the results of your EMG?

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Replies to "Welcome @smslee, Sorry to hear that your doctor has not offered or suggested any treatment to..."

Thank you for your helpful response and information. I'm sure there's s combo of symptoms that I'm experiencing and throw restless legs syndrome into the mix and every night is a dance party 🦵🦵🦵🤣 .
I will certainly post an update once I get the results. Thank you 🩵