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Questions on IVIg treatment for what I have: Axonal sensory-motor

Neuropathy | Last Active: Sep 11, 2023 | Replies (40)
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@smslee

I was diagnosed with Idiopathic Axonal sensorimotor polyneuropathy 4-1/2 years ago. My doctor offered no treatment or advise. I'm now struggling to walk more than a few feet without severe leg and hip fatigue, burning, weakness, etc. I thought this was due to my back issues but recent tests show no serious issues. So back to the Neurologist with my complaints... New EMG done yesterday and waiting for the results.

I also have Psoriatic arthritis, Venous Insufficiency, Lymphedema, history of blood clots and bilateral pulmonary embolism (this past Jan), and possibly Ehlers Danlos Syndrome.

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Replies to "I was diagnosed with Idiopathic Axonal sensorimotor polyneuropathy 4-1/2 years ago. My doctor offered no treatment..."
John, Volunteer Mentor | @johnbishop | Aug 31, 2023

Welcome @smslee, Sorry to hear that your doctor has not offered or suggested any treatment to help with your symptoms. I also have trouble walking very far with my idiopathic small fiber PN, lymphedema in my legs and a few other ailments. My lymphedema is controlled fairly well with knee high compression socks and I only have numbness with my neuropathy so can't imagine adding the burning into my symptoms. I'm not sure your symptoms are all due to the neuropathy since both lymphedema and venous insufficiency may also be part of the problem. Here's some information on both conditions that might explain it better.

"Chronic venous insufficiency signs and symptoms include: Achy or tired legs. Burning, tingling or “pins and needles” sensation in your legs. Cramping in your legs at night."
--- Chronic Venous Insufficiency (CVI) - Cleveland Clinic: https://my.clevelandclinic.org/health/diseases/16872-chronic-venous-insufficiency-cvi.

"Decreased physical function, dyspnea, and fatigue occurs frequently in patients with lower limb lymphedema. Nearly a third of patients with lower limb lymphedema experienced three of more physical symptoms,17 and these symptoms are exacerbated by prolonged standing, heat, and walking."
--- Symptom Frequency, Intensity, and Distress in Patients with Lower Limb Lymphedema:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4926205/.
Can you provide an update when you get the results of your EMG?

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