1. < Esophageal Cancer

5 months after esophagectomy. Hard to get enough calories. Frustrated

Posted by mikezaz @mikezaz, Aug 22, 2023

Esopagectomy was 3/29/23. Needed no chemo/radiation. Swallowing is good. Hard to consume 2400 calories because my stomach seems upset all the time. Been doing all the tricks, and am off the feeding tube for 2 months. May have to go back on if I can’t maintain weight.

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hogfarmer-Mary Schmitt | @hogfarmer | Aug 31, 2023

I was the Mary that was on the ZOOM call with "smart patients" last night and I can tell you that anytime they mess with the intestines you will have pain. It could be a little of what you are eating but mostly just getting inside the body causes scar tissue which in turn can cause pain. Just be patient and run the marathon and not a race on your recovery.

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Colleen Young, Connect Director | @colleenyoung | Aug 31, 2023
In reply to @hogfarmer "I was the Mary that was on the ZOOM call with "smart patients" last night and..." + (show)
@hogfarmer

I was the Mary that was on the ZOOM call with "smart patients" last night and I can tell you that anytime they mess with the intestines you will have pain. It could be a little of what you are eating but mostly just getting inside the body causes scar tissue which in turn can cause pain. Just be patient and run the marathon and not a race on your recovery.

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Hi @hogfarmer Mary, so glad to see your post and the help you offer to @mikezaz and others. How are you doing? How is your husband doing?

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mrgvw | @mrgvw | Sep 1, 2023
In reply to @hogfarmer "I was the Mary that was on the ZOOM call with "smart patients" last night and..." + (show)
@hogfarmer

I was the Mary that was on the ZOOM call with "smart patients" last night and I can tell you that anytime they mess with the intestines you will have pain. It could be a little of what you are eating but mostly just getting inside the body causes scar tissue which in turn can cause pain. Just be patient and run the marathon and not a race on your recovery.

Jump to this post

Hi Mary... Gary here, from our twice weekly Zoom calls. Great seeing you on the call... and Mike as well. I'm sure most of us thought Mike was doing well for how early on he is post-op. This is a crazy ass surgery... and it is sad to say that 5 months is very early. I know I personally saw tremendous improvements in my second year post-op vs my first year. But there was a lot of misery to go thru first... watching and waiting for my body to adapt to its new geometry and functioning without those vagus nerves. Just a crazy journey.

Be well,

Gary

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