← Return to Found PNET on tail of pancreas but told it’s nonfunctional

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@pete1962

Hi c2pricorn66

I had a similar story, accidentally found a tumor on my pancreas identified as pNET; mine was functional. Long story short: I had a Whipple in March 2019, all went well besides a minor issue that caused me to stay 3 weeks in hospital. The procedure has been demanding on my body, but recovery (at that time age 57, relatively fit) went well. Was back at work in June 2019 and had not suffered any major consequences besides creon with food.

In Dec 2022 during a routine follow-up was diagnosed with NELM. Started in March 2023 with Landerotide monthy 120ml: no side effects and tumor already shrinking.

A diagnosis of Cancer is always scary and mentally dealing with it is difficult. Everybody deals with it differently. My wife suffered a lot while I was positive as soon as I looked at statistics and understood consequences / options (I am a rational guy). My wife told me that my attitude really helped her to get through this difficult period. Based on this statement I believe that it will make a significant difference to all loved ones that are involved / exposed to cancer if one of you can be mentally strong and positive.

I hope this gives both some encouragement and I wish you good luck for the upcoming procedure and recovery.

Peter

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Replies to "Hi c2pricorn66 I had a similar story, accidentally found a tumor on my pancreas identified as..."

Thank you so much Peter. This tested individual's fortitude. My partner has accepted it and there's nothing we can do about it - just to get that thing out and look forward to positive recovery. It is hard to see your love ones go through that mix feeling of emotions. I'm trying to be brave now and more supportive. Thank you for sharing your journey, it helps us to stay positive and @Mayo forum. 🙏
Lina