Looking for men who recently had a laparoscopic radical prostatectomy

I highly recommend asking your doctor to prescribe a condom catheter. It is easy to wear, not that uncomfortable and you will not leak into your clothing. I use it when I know I will be away for a long period of time and can't get to a bathroom easily. They have leg bags that are hard to notice under long pants and smaller thigh bags that are hard to notice under shorts. When the time is right, you can empty whatever accumulated in the leg bag and then continue on with your activity. Yes, it is kind of a 'crutch" meaning it doesn't teach us to hold our urine, but some days you just have to have freedom of movement over longer blocks of time. My supplies are covered by my insurance on a monthly basis and the condom part is disposable. Just make sure you figure out the correct size/fit or you will likely leak. The instructions are easy to follow in that respect.

I had my prostate removed with a DaVinci robot in February of this year. The pathology report said they got everything, all the extraneous things they removed had no cancer and the prostate margins were clear, so I have had no follow up treatment of radiation or drugs so far. My cancer was Stage Two. My Gleason was 4+3=7 and my PSA was above 4 once but had been rising steadily for years. My first follow up PSA was .014.

Thanks for the info. Did you sometimes have a good amount of leakage and others not bad? Were your lymph nodes removed? I had Gleason 9’s. Not sure if I have to have radiation to follow up as well until I go back on 9/14.

I had the surgery on Aug. 3, at home now, all tubes gone, Cancer gone too per the Lab post surgery. I cut back on coffee too and only 1 Leo beer large one in Thailand not my usual 2. I get up many times in the night too so the diaper is not even that wet. Yesterday, half the day was good but after 3 or so, I have to get to the toilet within 10 seconds or pee is all over. I can go every 4 or 5 minutes too. I take a pill pee to stop it. Some days it does and others, NOT. I drink a lot of water. I pee a lot. It is hard to go out. I have a little pad when we do go out but I am stressed most ot the time out. If I roll over on my right when I sleep it hurts so I can't do that. I do those damn dinky exercises all day long too. WE will never be normal like before ever. That is what others who had it done some years back. Dinky looks dead too. This last month was the hardest and most painful of my life. I am trying to forget it now. I don't have to do anymore Lupron nor any radiation either. In 3 months, I do a new blood work and if PSA remains at 0 and does not bump up, no need for a PMSA Pet Scan or Lupron or radiation. I looked at the Hans Table and recurrence is pretty low for me. What word would I use to describe this last month, AGONY but it is slowly improving. Today, slept a lot but did start walking 2 days ago and that felt good but each day, I had to stop and just pee real fast under any tree I could find.

I had rlp in September 2018 with Gleason score 10 and still don't have good urine control. I will admit that i have not been religious about doing Kegels or other exercises to build up sphincter strength. At first I used condom catheter with a leg bag and that worked pretty well as long as you are clean and dry when you roll the condom on and expect to change it at least every 24 hours. urine will make the glue not stick anymore and if the hose kinks it is trouble, Then I tried a clamp which has worked well for almost five years. It can be annoying sometimes but you get used to it and it lets my live my life. I have traveled all over the world and no one would know that i am incontinent. I still need pads because there is still some leakage but usually one will last all day and i' don't wear the clamp at night. I have noticed that i leak a lot less when sleeping or sitting. I just bought the book "From incontinence to continence in 10 weeks" and am going to try to eliminate the clamp.

I do those exercises so much, you would think it would take some but it is early still. I take those pills called Minapines and they are real good, 25mg. I also notice laying or sitting, I am good to not pee all over. I just have to think making efforts in what I call the dinky exercises as I try to make it light. I don't know about clamps but I mean my weiner is small after some Lupron shots and seems damn dead too. It is sad as I was well endowed too but now a midget that does not move and spills his drinks all over the place. hehe I am happy they got it all I hope so the other outcome, I would not be joking at all. I will say this has been the most horrific and painful month of my life.

I had rlp in September 2018 with Gleason score 10 and still don't have good urine control. I will admit that i have not been religious about doing Kegels or other exercises to build up sphincter strength. At first I used condom catheter with a leg bag and that worked pretty well as long as you are clean and dry when you roll the condom on and expect to change it at least every 24 hours. urine will make the glue not stick anymore and if the hose kinks it is trouble, Then I tried a clamp which has worked well for almost five years. It can be annoying sometimes but you get used to it and it lets my live my life. I have traveled all over the world and no one would know that i am incontinent. I still need pads because there is still some leakage but usually one will last all day and i' don't wear the clamp at night. I have noticed that i leak a lot less when sleeping or sitting. I just bought the book "From incontinence to continence in 10 weeks" and am going to try to eliminate the clamp.

I would like to read that book as well. I looked on google but didn’t see that book at all. Do you know who wrote it?