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@bunzman

Thank you, I've read similar reports and interpret each a bit differently. Some were about both covid and influenza causing seizures. You said you had the seizures well after first getting covid. I assume you were not tested in January of 2020 as testing was near impossible? Yes tests suggest that people had developed anti-bodies but clearly it was very early stage based on the measurables in terms of people actually getting sick and hospitalized, and then eventually through the tracking of positive tests. As the report states itself: "Despite the findings, widespread community transmission in the U.S. was unlikely until late February, the authors said".

If it was 3 1/2 yrs later you had your seizure it was likely due to a later covid infection (seizure usually occurs w/in 6 mos. of covid?) and as a long covid characteristics as the first report of covid post infection seizure was in April of 2021. So covid or not, clearly your best care is in dealing with the Epilepsy. I raise this as I've must have read and heard thousands of testimonies on covid and long covid and it really is important that people focus on getting someone to care and treat their symptoms and not get discouraged over anyone claiming they did or did not have covid and when. Clearly after the initial infection we are dealing with something unique that we've labeled "long" or "post covid", but no matter what it is called progress must be made in getting a better handle in terms of what it is and how to treat and mitigate it. That may be complicated in that in reaction to the original covid; "long covid" manifests in different ways. Yes, makes sense to avoid mental stress and I've gotten mixed reports of physical stress, but I am hopeful avoiding stress is not the only way to avoid long covid and its impact but that we can get a much better handle, or should I say "handles" on how we can start to get an upper hand. All the best to everyone who is a part of that journey...

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Replies to "Thank you, I've read similar reports and interpret each a bit differently. Some were about both..."

The studies I’ve seen on covid and Epilepsy only tracked patients for 6 months. My feeling is the risk does not go away after 6 months. I got covid very early in the pandemic, and it took 3.5 years of post covid to develop Epilepsy. Time will tell how much of a
risk this is for post
Covid patients and for how long. I also wanted to touch on the question “has anyone gotten over post covid”. At times I felt I was over it - about 2 years post covid I felt great - I had a ton of energy and started walking an hour every morning. I felt sharp - no brain fog. I lost weight without really trying. My doctor congratulated me. I thought I was done with Covid. Then the weight loss continued, and I realized I had no appetite. I could skip a day and not feel hungry at all. I lost 50 pounds in a year, and the brain fog came back, likely due to poor nutrition. So yes, at one point I thought I was done with Covid, only for something else to pop up later. It may be a see-saw of periods of relatively better or worse health for some time. Treat the symptoms as they come up.