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Found PNET on tail of pancreas but told it’s nonfunctional
Neuroendocrine Tumors (NETs) | Last Active: Jan 14 2:54pm | Replies (97)Comment receiving replies
Hi 👏 from AU. My partner (x army) was going to have his hernia repaired so CT scan was conducted instead a lesion in his pancreatic duct was spotted. No symptoms. He's had UES using Dotate and confirmed slow growing nonfunctional and benign tumour. PET Scan was performed and it's localised. Endocrinologist suggested to do laparoscopic distal pancreactomy and spleenectomy cause it could change its behaviour for the worse. He is schedule on the 6th Sept. i am a Registered Nurse, his partner and his carer. It's frightening, tearful and stressful more so to him due to PTSD. pNET was accidentally found and caught early. We are hopeful. Being here in this forum/blog and talking to people made us realize that there is a bright side in the horizon after turbulence. We have big faith in our surgeons hands most especially to our Almighty. creator. Hoping you and your husband can get an answer soon so they can put a plan in place.
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Hi c2pricorn66
I had a similar story, accidentally found a tumor on my pancreas identified as pNET; mine was functional. Long story short: I had a Whipple in March 2019, all went well besides a minor issue that caused me to stay 3 weeks in hospital. The procedure has been demanding on my body, but recovery (at that time age 57, relatively fit) went well. Was back at work in June 2019 and had not suffered any major consequences besides creon with food.
In Dec 2022 during a routine follow-up was diagnosed with NELM. Started in March 2023 with Landerotide monthy 120ml: no side effects and tumor already shrinking.
A diagnosis of Cancer is always scary and mentally dealing with it is difficult. Everybody deals with it differently. My wife suffered a lot while I was positive as soon as I looked at statistics and understood consequences / options (I am a rational guy). My wife told me that my attitude really helped her to get through this difficult period. Based on this statement I believe that it will make a significant difference to all loved ones that are involved / exposed to cancer if one of you can be mentally strong and positive.
I hope this gives both some encouragement and I wish you good luck for the upcoming procedure and recovery.
Peter