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@lisajade4mayo

Thank you! I just messaged my doctors about this finding. Everyone I have seen has sort of thrown their hands up in the air because they don’t know what to do. They are not living it. I understand that they are busy, but I just know in my heart that there has to be a way to minimize symptoms. Getting covid was very scary for me, but I never would have tried paxlovid without covid. It kept me from getting really sick and also almost rid me of my RA like symptoms. I’m trying not to travel because I’m not strong right now, but I’m at the point of doing anything to find answers. I’m not sure if my rheumatologist will even entertain the idea. But I’ve connected with my other doctors. Looks like I need an immunologist??? Best and thanks. Lisa

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Replies to "Thank you! I just messaged my doctors about this finding. Everyone I have seen has sort..."

Best of luck ! See if any immunologists in your area work with longCovid . Immunologist generally work with patients who have allergies and asthma, the person I saw is involved in long Covid research. Be persistent, ask the doctors if you can email research . Mention Mayo Clinic, Stanford - they hold these institutions in high regard, so they will take your contribution seriously. It’s a collaborative effort . We long haulers are highly motivated to find things that work, doctors have to deal with many different conditions and long Covid is just one of them.