← Return to Does anyone know of anyone whom has gotten over Long Covid Condition

Discussion
Comment receiving replies
@earlylonghauler

The date of 1/20/2023 is the first laboratory confirmed case, from a traveler returning from Wuhan who checked himself into a hospital, where he was tested and found positive. That does not mean it was the first case in the US - just the first confirmed case. Blood donations taken in the US by the Red Cross in December 2019 have tested positive for COVID-19 and show it was in circulation in the US at least by December 2019. I believe caught Covid in the other Washington (DC). My neurologist cannot say for certain that Covid caused my epilepsy, but Covid can cause many neurological issues, including an increased risk of seizures. See articles below.

https://www.npr.org/sections/coronavirus-live-updates/2020/12/01/940395651/coronavirus-was-in-u-s-weeks-earlier-than-previously-known-study-sayshttps://www.ccjm.org/page/aan-2021/covid-seizures-epilepsy

Jump to this post


Replies to "The date of 1/20/2023 is the first laboratory confirmed case, from a traveler returning from Wuhan..."

Thank you, I've read similar reports and interpret each a bit differently. Some were about both covid and influenza causing seizures. You said you had the seizures well after first getting covid. I assume you were not tested in January of 2020 as testing was near impossible? Yes tests suggest that people had developed anti-bodies but clearly it was very early stage based on the measurables in terms of people actually getting sick and hospitalized, and then eventually through the tracking of positive tests. As the report states itself: "Despite the findings, widespread community transmission in the U.S. was unlikely until late February, the authors said".

If it was 3 1/2 yrs later you had your seizure it was likely due to a later covid infection (seizure usually occurs w/in 6 mos. of covid?) and as a long covid characteristics as the first report of covid post infection seizure was in April of 2021. So covid or not, clearly your best care is in dealing with the Epilepsy. I raise this as I've must have read and heard thousands of testimonies on covid and long covid and it really is important that people focus on getting someone to care and treat their symptoms and not get discouraged over anyone claiming they did or did not have covid and when. Clearly after the initial infection we are dealing with something unique that we've labeled "long" or "post covid", but no matter what it is called progress must be made in getting a better handle in terms of what it is and how to treat and mitigate it. That may be complicated in that in reaction to the original covid; "long covid" manifests in different ways. Yes, makes sense to avoid mental stress and I've gotten mixed reports of physical stress, but I am hopeful avoiding stress is not the only way to avoid long covid and its impact but that we can get a much better handle, or should I say "handles" on how we can start to get an upper hand. All the best to everyone who is a part of that journey...