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I feel lost: We don’t have a diagnosis yet
Caregivers: Dementia | Last Active: Sep 2, 2023 | Replies (23)Comment receiving replies
You guys are the best. I feel like part of the load has been lightened just by being here with others in the same boat. While I know this, it's always good to remember that I am not the first, not the last and not the only. Sounds corny, but it's so very true. I had not even thought about placing him before a diagnosis. This could be why I've been so focused on getting a diagnosis. Our doctor talked to me about IF it happens again, my fear is that IF it happens again I may not live to see another day. Most of you remind to journal and I've got notes on the more prominent events. What all should I be keeping notes on? I've got the list of all vitamins and supplements, his very worst and most scary times....what else should I be recording? I've given our doctor a copy of everything I've stated here.
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Do what you can for safety- my husband had a locked gun closet in the basement. The basement was full of a lot of stuff. I moved things over and piled things up in front of the door, made it look like a natural pile, figured it would slow things down if it came to that.
Carry your cellphone at all times, I used a fanny pack if I didn’t have pockets. I slept behind a locked door too.
Think of a plan if you suddenly need it- which neighbor is closest who will help you, who you can wait with after calling a nearby friend or relative, or the police.
Stop driving with him to friends/relatives, with any luck he’ll forget how to get there. You need to try to keep them safe too.
If he is admitted to the hospital, tell the discharge planner you can’t manage him at home, if you decide you can’t resume that life. The planner will help get him admitted to an assistive living “for extra support” and therapy services. That’ll give you a couple weeks to decide what’s next. I paid for medical transportation to the AL as I was worried he wouldn’t get out of the car. I’ve used alot of savings to have him there and Medicaid will be in the future, but no longer living afraid in Crazyland is well worth it.