Connect
Metastic prostate Cancer Survivors - longevity and quality of life
I was just diagnosed at the beginning of January and of course the news hit me hard. I have found a lot of hope in the discussions within this group. I am curious to know how long ago people in this group were diagnosed with metastatic prostate cancer and what your quality of life is like. Right now I have no symptoms from the cancer itself other than weight loss (which I am actively monitoring and dealing with via extra eating) and I have no side effects from the medications the doctors are prescribing. I know that I am at the beginning of this journey and I hope that my current status stays the way it is for many years. We all need to have hope, and I am learning a lot about traditional and new Treatment options.
Like
Helpful
HugInterested in more discussions like this? Go to the Prostate Cancer Support Group.
Connect
Seems more for Pancreatic C
https://www.medicalnewstoday.com/articles/319720
Its seems to depend on the treatment and your response. In general, your PSA is supposed to decline to 0.1 or below, or at least below 0.2. This is regardless of the type of treatment. It indicates that either the cancer cells are all destroyed, or in hypernation. On the upside, the stat of 30% OS is probably out of date. Also beware of the trials data. The small print is that their PSA cut off is 0.5. That means the subject is taken off at that level and replaced with another. Do they get further treatment? Until they get to 0.1? The trials dont say it is rather doubful from the silence. Your doctor should try to get you down to 0.1.
Dont mind me. I am another layman trying to make some sense of the whole thing.
I was diagnosed with metastatic prostate cancer in January 2021. Thanks to the US Preventative Services Task Force recommendation that men over 70 don't get p.s.a. tests any longer!! my urologist stopped. After a later routine general physical exam my primary care doc told me my blood numbers were a bit out of line. "Go see a hematologist". Did. My p.s.a. had shot up to 985. Hematologist said go quickly and get a hormone suppression shot. Fired my urologist and turned my care over to the hematologist/urologist and ever since have been getting the androgen deprivation hormone shots ("Lupron") plus abiteraterone ("Zytega") pills for testosterone suppression produced in other than the gonads. In my ninth decade, guys, I feel great BUT all they can do these days if the cancer has metastasized is PALLIATIVE treatment. There is NO CURE. The palliative treatments will stop working after a while and then . . . (put your affairs in order now!) -- (but I'm backstopping with natural herbal soursop (Graviola). Anybody have experience with that?)
see realmushrooms.com powder capsules