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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@peachambeauty

I finally was diagnosed at the age of 81 after several years of suffering with pain in my feet and balance problems. Some days are worse than others. My diagnosis was Idiopathic length dependent axonal sensorimotor polyneuropathy. My life has changed radically, but thanks to a supportive loving husband I can still find joy in my life. My neurologist has me on 900 mg of Gabapentin daily. Also I wear compression socks. I thought the Gabapentin wasn't helping me so I stopped it for one week, and then realized my symptoms were worse. I have accepted my condition and just will have to adjust to my limitations. Happy I have found this website.

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Replies to "I finally was diagnosed at the age of 81 after several years of suffering with pain..."
John, Volunteer Mentor | @johnbishop | Aug 29, 2023

Hi @peachambeauty, Welcome to Connect. Neuropathy does change our lives. Like you mentioned, maintaining a supportive loving husband and family definitely helps fill in the blanks and helps us get through the day. There are a lot of discussions in the Neuropathy Support Group if you are looking for specific topics. Here is Neuropathy Support Group page that lists the discussions - https://connect.mayoclinic.org/group/neuropathy/.

I think one thing that really helped me when I was first diagnosed was learning as much as I could about my condition and options available to provide relief. Here are a couple of sites if you haven't already seen them:
--- Foundation for Peripheral Neuropathy - Living Well: https://www.foundationforpn.org/living-well/
--- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview.

Do you have any questions you are trying to get answered?

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Ray Kemble | @ray666 | Aug 29, 2023

Hi, Sally!

And welcome! Yes, adjusting to limitations can prove quite the challenge. It has for me. Not a day goes by that I don't say to my partner, "I wish I could help you with that … "Fortunately, she's totally understanding, as you say your husband is, too. Life continues to have its rewards.

Best wishes to you!
Ray

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