I'm so sorry that your pain continues from the effects of your Arachnoiditis. I too have delt with Arachnoiditis - for a number of years. It has advanced from my Lumbar spine area to my Thoracic and my Cervical spine areas. I have had over 8 back surgeries, well over 55 injections in various levels of my spine, I've exhausted all of the pain mgt. specialists in a 100 miles range from my home, plus written to the spine centers of a variety of well known hospitals, clinics and facilities and privat doctors. I've tried holistic treatment of various types and I was in private as well as group counseling to help me deal with my 24/7 severe pain, that even causes me to pass out from the intensity of the pain , several times each day. I had a Spinal Cord Stimulator implanted in my spine several yrs ago. It was helpful to me, to some degree, for about 6 years. Then when my Spinal Cord Stimulator stopped working, my pain mgt doctor at the time operated again to remove the old SCS and battery pack and all of the wires too. Then he replaced everything with an advanced model from the same company. It gave me stimulation in the wrong areas duspite anither surgery to re- implant it. I was advised by a different pain mgt doctor to leave it in place but not to use it - which I have done. But through everything - I have not given up. I stay focused on what I call an "attitude of
gratitude ". I start each day as I see the sky lightening and the day starting, I thank God, the Angels and Saints and all those that have and still do encourage me each time we talk, I am grateful for a sense of humor, and I'm greatful for my faith that keeps me centered and positive that someday, I don't know when or how - but there will be treatment to both help releave our Arachnoiditis 24/7 severe pain, plus , to keep the Arachnoiditis from spreading. Each day holds the possibility of hope and/or the discovery of treatment or even a cure being discovered. Do I have days, or periods of time in a day that I feel discouraged? Yes , and that's ok. But when that happens I may practice Creative Visualization, or watch a bird soring through the sky - just enjoying the wind current , or a variety of other things that are amazing in Mother Nature. Then at night (I'm up most of the night as my pain won't allow me to sleep , except for maybe 15 minutes to 45 minutes of broken sleep each night. I can't lay down in bed to sleep as to lay don increases my pain substantually. So, each night and throughout the day, I am in my recliner - but not reclined - the back of the recliner is absolutely straight up and down. Tilting back, or reclining increases my pain substantially. But my recliner has good padding and features that make my life easier. Too bad the chair factory didn't teach it how to cook breakfast for its human housemate. 🙃 Hang in there and try the "attitude of gratitude " suggestion , if you don't already practice it. I hope it helps you. 🙏🏼 God bless.
Mata