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Thank you for replying, Markymarkfl. My stepdaughter is newly diagnosed and doing the Folfirinox with variants. She has a couple more treatments in September and it will then be determined if she's a candidate for surgery.
I'm wondering where she would go from there if surgery is not done. For difficult cases is Mayo the best place to go for help? Stanford? We have no experience with pancreatic cancer and have so much to learn, including the
top centers/doctors to seek 2nd opinions.
Replies to "Thank you for replying, Markymarkfl. My stepdaughter is newly diagnosed and doing the Folfirinox with variants...."
Johns Hopkins Hospital, if you're in the mid-Atlantic.
Wishing your stepdaughter well -- and you, and everyone else who cares about her / worries about her.
@di341 there are excellent pancreatic oncologists at John’s Hopkins. As recommended previously , it is very good to have a connection at a center of excellence that hosts clinical trials in case you should be a fit for one. Connecting with MSK, or MD Anderson or JH is a solid angle for this and would be a great second or third opinion. C
Find experts, make sure that you are seen at a center of excellence. Self advocacy is essential. Some of the top places are Dana Farber Cancer Institute, Memorial Sloan Kettering Cancer Center, Weill Cornell University Medical Center, Columbia University, New York University Langone, Johns Hopkins University, MD Anderson, Mayo Clinic. I had surgery at Sloan Kettering (I live outside of NYC). My care was tops
National Pancreas Foundation Center of Excellence Listing
https://pancreasfoundation.org/patient-resources/npf-centers-of-excellence/
Pancreatic Cancer Action Network can also help you connect with resources
https://pancan.org/
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Hello. Depending on where you live, there are centers of excellence in many places. Sloan Ketterin and NY Presbyterian in NY,
Roswell Park in Rochester NY. Dana Farber in Boston, MD Anderson in Texas, as well as of course Mayo Clinic in 3 different cities.
I had my Whipple done in Albany, NY .
My surgeon was top notch.
I wish you the best in getting through all of this and wishing you the best outcome ..
Cancer free. Keep
On visualizing thriving through it all.!!