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Living with inoperable pancreatic cancer

Pancreatic Cancer | Last Active: Sep 12, 2023 | Replies (43)

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@barbara333

I was initially diagnosed September 2021 and began chemo in November 2021. In October 2022 my PET showed no active cancer. My Ca19-9 had continued to drop throughout treatment. Until January 2023 my treatments were every 2 weeks, then to 3 weeks. Last month they stretched to every 4 weeks. PET scans have continued to show no activity snd Ca19-9 is 14. The lesions that were on my liver are gone and my lungs do not have any pinpoint activity. I still have neuropathy from the 10 rounds of oxaliplatin. I continue on leucovorin, campostar, and 5 fu. I feel well, I stopped dwelling on the fact that I was devastated by a cancer diagnosis after about 10 weeks and now it is a fact just like asthma and diabetes. I pray for those that provide me care and have so many that have prayed for my and the success of my treatment. The prayers have given me strength to continue the treatment, removed stress and worry, given me a peace, and enhanced the success of my medical treatment. While many do not believe in the power of God, I do. I have had those of different faiths and religions pray for me and I have learned to pray for others. I believe that healing our spirit is a big part of being able to live with cancer.

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Replies to "I was initially diagnosed September 2021 and began chemo in November 2021. In October 2022 my..."

I am so happy for the fantastic progress you are experiencing. May you continue to prosper.

Where are you being treated Barbara? Your situation provides a lot of hope.

Amen Barbara! This is a long journey and on days we could feel alone in it but we know He is always with us.
We cannot get stuck on statistics except to work to find better therapies and bring awareness to this Silent Killer.
I was NED and then recently an “escaped renegade” surfaced-and we are dealing with it! I learn a great deal from this forum and am thankful to reminded of the hope we all have. There are great physicians dedicated to this disease-seek them out. And remember that THE Great physician is always open to our call.

It's good to hear your treatments are working for you. It's nice to have something positive for a change. In Oct. 2022, I was told I had pan cancer and it was like "Oh no!", but deceided I needed to deal with it and keep going. I think it's wonderful you are praying for your caregivers. I forget to do that, especially with what they deal with everyday must take a toll on them too. I also have had many people praying for healing and it humbles me and at times overwhelms me. I want to make sure I'm worthy of these prayers. I also believe in the power of God, because I have had several things happen to me that at the time didn't seem like a big deal. Now when I look back I go "wow", how this all worked for my benefit! I do agree that the power of prayer, healing our spirit & trying to stay positive all help in being able to live with cancer. Prayers for your continued healing. Take care.