Connect
← Return to Anyone out there with Erythromelalgia?
Discussion
Anyone out there with Erythromelalgia?
Autoimmune Diseases | Last Active: Dec 31, 2025 | Replies (310)Comment receiving replies
I too soak daily with warm water about 100 degrees. Seems counterintuitive but I think helps desensitize to the heat of a flare. Also feels good and is relaxing making me think I’m doing something positive without drugs.
Replies to "I too soak daily with warm water about 100 degrees. Seems counterintuitive but I think helps..."
Thanks. We all try things and these postings help us know what others are trying!
Connect
The warm water softens my feet and heels if nothing else. I cannot wear closed shoes. As a result, my heels are prone to drying out and cracking. The warm water keeps them soft. I do the soak and apply the lotion in the evening before going to bed.