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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)

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@chme

I too soak daily with warm water about 100 degrees. Seems counterintuitive but I think helps desensitize to the heat of a flare. Also feels good and is relaxing making me think I’m doing something positive without drugs.

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Replies to "I too soak daily with warm water about 100 degrees. Seems counterintuitive but I think helps..."

The warm water softens my feet and heels if nothing else. I cannot wear closed shoes. As a result, my heels are prone to drying out and cracking. The warm water keeps them soft. I do the soak and apply the lotion in the evening before going to bed.

Thanks. We all try things and these postings help us know what others are trying!