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Looking for men who recently had a laparoscopic radical prostatectomy
Prostate Cancer | Last Active: Sep 1, 2023 | Replies (54)Comment receiving replies
I had the surgery on Aug. 3, at home now, all tubes gone, Cancer gone too per the Lab post surgery. I cut back on coffee too and only 1 Leo beer large one in Thailand not my usual 2. I get up many times in the night too so the diaper is not even that wet. Yesterday, half the day was good but after 3 or so, I have to get to the toilet within 10 seconds or pee is all over. I can go every 4 or 5 minutes too. I take a pill pee to stop it. Some days it does and others, NOT. I drink a lot of water. I pee a lot. It is hard to go out. I have a little pad when we do go out but I am stressed most ot the time out. If I roll over on my right when I sleep it hurts so I can't do that. I do those damn dinky exercises all day long too. WE will never be normal like before ever. That is what others who had it done some years back. Dinky looks dead too. This last month was the hardest and most painful of my life. I am trying to forget it now. I don't have to do anymore Lupron nor any radiation either. In 3 months, I do a new blood work and if PSA remains at 0 and does not bump up, no need for a PMSA Pet Scan or Lupron or radiation. I looked at the Hans Table and recurrence is pretty low for me. What word would I use to describe this last month, AGONY but it is slowly improving. Today, slept a lot but did start walking 2 days ago and that felt good but each day, I had to stop and just pee real fast under any tree I could find.
Replies to "I had the surgery on Aug. 3, at home now, all tubes gone, Cancer gone too..."
I had rlp in September 2018 with Gleason score 10 and still don't have good urine control. I will admit that i have not been religious about doing Kegels or other exercises to build up sphincter strength. At first I used condom catheter with a leg bag and that worked pretty well as long as you are clean and dry when you roll the condom on and expect to change it at least every 24 hours. urine will make the glue not stick anymore and if the hose kinks it is trouble, Then I tried a clamp which has worked well for almost five years. It can be annoying sometimes but you get used to it and it lets my live my life. I have traveled all over the world and no one would know that i am incontinent. I still need pads because there is still some leakage but usually one will last all day and i' don't wear the clamp at night. I have noticed that i leak a lot less when sleeping or sitting. I just bought the book "From incontinence to continence in 10 weeks" and am going to try to eliminate the clamp.
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I highly recommend asking your doctor to prescribe a condom catheter. It is easy to wear, not that uncomfortable and you will not leak into your clothing. I use it when I know I will be away for a long period of time and can't get to a bathroom easily. They have leg bags that are hard to notice under long pants and smaller thigh bags that are hard to notice under shorts. When the time is right, you can empty whatever accumulated in the leg bag and then continue on with your activity. Yes, it is kind of a 'crutch" meaning it doesn't teach us to hold our urine, but some days you just have to have freedom of movement over longer blocks of time. My supplies are covered by my insurance on a monthly basis and the condom part is disposable. Just make sure you figure out the correct size/fit or you will likely leak. The instructions are easy to follow in that respect.