Looking for men who recently had a laparoscopic radical prostatectomy

Posted by bill1965 @bill1965, Aug 24, 2023

Had surgery 8/14 having a hard time dealing with the incontinence. Catheter removed 8/21. I know it’s early but just wondering if others are having a difficult time adjusting and how long it took to get back to normal urinate functions. Any advice to help the process along would be much appreciated.

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Had RLP seven weeks ago. Can definitely see continence steadily improving. I clearly leak more when I am active, especially later in the day when muscles are somewhat fatigued, but I think that is improving also. I do Kegels daily but admittedly not the quantity my nurse recommended when I had my catheter removed. The pad I wear at night has minimal urine in the morning. During the day I easily detect the need to urinate and have a reasonably strong stream. I can hold my urine pretty much as needed and consider that an extended Kegel. I put on a fresh pad each morning and usually wear it comfortably all day. My next step is moving from the maxi to the medium, then the light. I’m a 74 year old man and sound like a teenage girl discussing my period with the school nurse. You gotta keep a sense of humor about this crap!

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@donaldguy

Had RLP seven weeks ago. Can definitely see continence steadily improving. I clearly leak more when I am active, especially later in the day when muscles are somewhat fatigued, but I think that is improving also. I do Kegels daily but admittedly not the quantity my nurse recommended when I had my catheter removed. The pad I wear at night has minimal urine in the morning. During the day I easily detect the need to urinate and have a reasonably strong stream. I can hold my urine pretty much as needed and consider that an extended Kegel. I put on a fresh pad each morning and usually wear it comfortably all day. My next step is moving from the maxi to the medium, then the light. I’m a 74 year old man and sound like a teenage girl discussing my period with the school nurse. You gotta keep a sense of humor about this crap!

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When a bunch of us get together after golf or pickleball, we inevitably get around to discussing our latest medical predicaments, including prostate issues. We call it organ recital.

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@tomf

When a bunch of us get together after golf or pickleball, we inevitably get around to discussing our latest medical predicaments, including prostate issues. We call it organ recital.

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Hey did you notice one day you don’t leak much and the next you leak all day? I usually go through 2 depends at night but last night I only used one and it was quite dry. Then today I went through 3 pads at work. Did yours vary like that? I’m one week from cath renewal

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@bill1965

Hey did you notice one day you don’t leak much and the next you leak all day? I usually go through 2 depends at night but last night I only used one and it was quite dry. Then today I went through 3 pads at work. Did yours vary like that? I’m one week from cath renewal

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Right after the catheter was removed, I never had good days, only leaky ones. Now I have good days but I can almost guarantee a leaky one by drinking coffee or alcohol, especially a couple of beers after golf. They both irritate my bladder but I'm willing to put up with it some days. I don't have such self-discipline that I can forego those drinks forever. But I have curtailed them, especially coffee. And if I switch to a half glass of wine, it doesn't affect me as much.

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@tomf

Right after the catheter was removed, I never had good days, only leaky ones. Now I have good days but I can almost guarantee a leaky one by drinking coffee or alcohol, especially a couple of beers after golf. They both irritate my bladder but I'm willing to put up with it some days. I don't have such self-discipline that I can forego those drinks forever. But I have curtailed them, especially coffee. And if I switch to a half glass of wine, it doesn't affect me as much.

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I had the surgery on Aug. 3, at home now, all tubes gone, Cancer gone too per the Lab post surgery. I cut back on coffee too and only 1 Leo beer large one in Thailand not my usual 2. I get up many times in the night too so the diaper is not even that wet. Yesterday, half the day was good but after 3 or so, I have to get to the toilet within 10 seconds or pee is all over. I can go every 4 or 5 minutes too. I take a pill pee to stop it. Some days it does and others, NOT. I drink a lot of water. I pee a lot. It is hard to go out. I have a little pad when we do go out but I am stressed most ot the time out. If I roll over on my right when I sleep it hurts so I can't do that. I do those damn dinky exercises all day long too. WE will never be normal like before ever. That is what others who had it done some years back. Dinky looks dead too. This last month was the hardest and most painful of my life. I am trying to forget it now. I don't have to do anymore Lupron nor any radiation either. In 3 months, I do a new blood work and if PSA remains at 0 and does not bump up, no need for a PMSA Pet Scan or Lupron or radiation. I looked at the Hans Table and recurrence is pretty low for me. What word would I use to describe this last month, AGONY but it is slowly improving. Today, slept a lot but did start walking 2 days ago and that felt good but each day, I had to stop and just pee real fast under any tree I could find.

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@ddun1953

I had the surgery on Aug. 3, at home now, all tubes gone, Cancer gone too per the Lab post surgery. I cut back on coffee too and only 1 Leo beer large one in Thailand not my usual 2. I get up many times in the night too so the diaper is not even that wet. Yesterday, half the day was good but after 3 or so, I have to get to the toilet within 10 seconds or pee is all over. I can go every 4 or 5 minutes too. I take a pill pee to stop it. Some days it does and others, NOT. I drink a lot of water. I pee a lot. It is hard to go out. I have a little pad when we do go out but I am stressed most ot the time out. If I roll over on my right when I sleep it hurts so I can't do that. I do those damn dinky exercises all day long too. WE will never be normal like before ever. That is what others who had it done some years back. Dinky looks dead too. This last month was the hardest and most painful of my life. I am trying to forget it now. I don't have to do anymore Lupron nor any radiation either. In 3 months, I do a new blood work and if PSA remains at 0 and does not bump up, no need for a PMSA Pet Scan or Lupron or radiation. I looked at the Hans Table and recurrence is pretty low for me. What word would I use to describe this last month, AGONY but it is slowly improving. Today, slept a lot but did start walking 2 days ago and that felt good but each day, I had to stop and just pee real fast under any tree I could find.

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I highly recommend asking your doctor to prescribe a condom catheter. It is easy to wear, not that uncomfortable and you will not leak into your clothing. I use it when I know I will be away for a long period of time and can't get to a bathroom easily. They have leg bags that are hard to notice under long pants and smaller thigh bags that are hard to notice under shorts. When the time is right, you can empty whatever accumulated in the leg bag and then continue on with your activity. Yes, it is kind of a 'crutch" meaning it doesn't teach us to hold our urine, but some days you just have to have freedom of movement over longer blocks of time. My supplies are covered by my insurance on a monthly basis and the condom part is disposable. Just make sure you figure out the correct size/fit or you will likely leak. The instructions are easy to follow in that respect.

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@tomf

I highly recommend asking your doctor to prescribe a condom catheter. It is easy to wear, not that uncomfortable and you will not leak into your clothing. I use it when I know I will be away for a long period of time and can't get to a bathroom easily. They have leg bags that are hard to notice under long pants and smaller thigh bags that are hard to notice under shorts. When the time is right, you can empty whatever accumulated in the leg bag and then continue on with your activity. Yes, it is kind of a 'crutch" meaning it doesn't teach us to hold our urine, but some days you just have to have freedom of movement over longer blocks of time. My supplies are covered by my insurance on a monthly basis and the condom part is disposable. Just make sure you figure out the correct size/fit or you will likely leak. The instructions are easy to follow in that respect.

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When was your surgery?

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@tomf

I highly recommend asking your doctor to prescribe a condom catheter. It is easy to wear, not that uncomfortable and you will not leak into your clothing. I use it when I know I will be away for a long period of time and can't get to a bathroom easily. They have leg bags that are hard to notice under long pants and smaller thigh bags that are hard to notice under shorts. When the time is right, you can empty whatever accumulated in the leg bag and then continue on with your activity. Yes, it is kind of a 'crutch" meaning it doesn't teach us to hold our urine, but some days you just have to have freedom of movement over longer blocks of time. My supplies are covered by my insurance on a monthly basis and the condom part is disposable. Just make sure you figure out the correct size/fit or you will likely leak. The instructions are easy to follow in that respect.

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Did you have radiation and Lupon previously? We’re you high risk, high Gleason scores?

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@bill1965

Did you have radiation and Lupon previously? We’re you high risk, high Gleason scores?

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I had my prostate removed with a DaVinci robot in February of this year. The pathology report said they got everything, all the extraneous things they removed had no cancer and the prostate margins were clear, so I have had no follow up treatment of radiation or drugs so far. My cancer was Stage Two. My Gleason was 4+3=7 and my PSA was above 4 once but had been rising steadily for years. My first follow up PSA was .014.

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That’s great! Your luck. Don’t know my after surgery biopsy yet. It’s one of those I want to know but I don’t want to know. I had the aggressive type.

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