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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)

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@oldkarl

@clayhere Hi, Clay. Welcome to the way things really can be. Yes, you have a lot of issues, but I wonder about them. That is, it may well be that you are not having an attack, but something else. I learned the hard way not to be too quick about diagnosing myself. What you have could be spleen, pancreas, or pericardia. Any kind of inflammation will cause this pain. the pericardia might bring in the drop in blood pressure, and the pains in the shoulders, etc. Keep pushing your doctors, and test everything you two can think of. WBC, protein, nerve signals, etc. But hang in there. It has taken me decades to get anywhere near the truth

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Replies to "@clayhere Hi, Clay. Welcome to the way things really can be. Yes, you have a lot..."

Hello old Karl, I have had many test but they showed normal. I found my answer at Mayo in Florida. After they did several test and found small fiber peripheral neuropathy, from what I can find on it, it is a rare condition, I was told on 10/12/2017. The nerves that have damage control the autonomic area.

@clayhere Hi, friend! I guess a good sense of humor is the most important part of recovery or even staying alive. Yesterday I was putting on my compression sox and broke or dislocated my pinkie toe. I did not feel anything, but I heard a POP, and the toe was off at a 90 degree to the other toes. Today the whole area of the toe and outside area of the ball are purple and blue. RATS! First bone I have ever broken, apart from the bone around my nose. With this stuff, I hear that broken bones are rather the norm.